RWJ. Day 14 ( for real this time)

Hi all, well I guess the days are all starting to run together, yesterday was really day 13, but as we have established there is no correcting with the iPad!! It is also Reinfusion Day +7. Sarah was uncomfortable last night with the new IV lines, we were up a lot. She woke this morning running a temp of 103, alternating between freezing and sweating. All her counts, white cells, red cells and platelets are all very low, she needs transfusions. It took until 3:30 pm to get her temp under 100, she slept most of the day thank goodness, when she is awake, she is miserable! The nurse started the platelet transfusion at 4 pm, when that is done she will get a blood transfusion. In the mean time, she is still getting nutrition via the port, and loads of antibiotics in one of the other lines. She gets so many different things, I don't know how the nurses keep it all straight, especially since I can't even remember what day it is. Zen came to check on us and bring the clean laundry and of course Sarah's mail. We sent him home with another huge load of dirty clothes and blankets, I think we will stick to hospital bedding until Sarah's counts start rising. That's all for now, more later, unless I fall asleep. Maria