Thursday, May 17, 2012
RWJ. Day 16-------------Day +9
After 3 horrific days I think we have finally turned the corner. I also want to say that oncology nurses truly are angels, to care for people who are so sick that they want to give up takes a very special kind of person. We have been blessed with several of these kind, caring, compassionate angels in the past couple of weeks. To say that Sarah has been to hell and back is an understatement, when the doctors said she would hit rock bottom, they meant it. It has been very difficult for me to accompany my daughter on this journey, watching your child suffer is it's own kind of hell. We did have a much better day today, and hopefully that will continue to be the case. Some long anticipated positives were realized today:
1-no fever all day!
2-needle was removed from port, and not reaccessed.
3-Sarah was "unhooked" and able to shower and rest for a few hours.
4-started weaning off some meds, and now taking almost all meds orally instead of through IV.
5- Sarah was finally able to eat today, Daddy brought Wendy's, and she was very happy, so no more IV nutrition.
6-best of all, white blood count started going up!!! Platelets and red blood counts continuing to rise!!!
Sarah is still singing her, "I want to go home NOW" song, patience is the one thing they don't have a pill for here. Tomorrow we have to work on getting her out of bed and walking and we will be closer to our goal of getting out of the hospital! Keep up the good work honey, you are almost done!
Night all,
Maria
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